Spoon Talk

What is this spoon talk

Amongst Lupus heroes

They symbolize our energy

How fast it can go

You need one to get up

But don’t be too fast

For one spoon opens your eyes

That’s how long a spoon lasts

Throughout the day you have

Limited spoons to use

By mid day you are

Running on a short  fuse

Who would have thought

A conversation would take

So much energy…a spoon

Concessions we must make

Oh and the smiles

They are deceptive too

But she doesn’t want

This to be a burden to you

So she smiles and laughs

While spoons are being spent

Until she realizes that

Her energy…it went

I guess if fatigue was

The extent of this disease

It would be a cake walk

Like a soft blowing breeze

But there is the pain and swelling

There are the organs shutting down

There are the tears she sheds

When no one else is around

There is the knowledge that

Lupus tends to create

Pain, bruising, swelling

The rashes, fatigue…the aches

Its amazing exactly how much

One shining smile can hide

Fear of the unknown

Lupus is a frightening ride

She gives a spoon for this

And a spoon for that

It may get you going

But how do you get back

Every idea you have

Every motion you make

Every attempt at normalcy

Is ALL lupus takes

So I am sharing with you

On this unspecific day

Be aware that this disease

Wants to kill all in its way

So my prayers are lifted up

And my heart it breaks

I know your struggles

How your strength breaks

Lupus and spoons

One day will be done

Keep hope in your hearts

This war will be won

I am sending you a smile

Healing energy and joy

For those days when

Your life feels a void

From my heart to yours

Til we fear the spoon no more

I wish you love and joy

Make memories galore

Advertisements